A-T Hope Cure

A while ago, my mom told me that the ATCP wanted people with A-T to make a video saying that they needed a cure. When she asked me if I would make one, I declined. I didn't want to say I "needed" a cure. I decided to write explaining why. Some may think it absurd or offensive, but I don’t care--it’s true.  I don’t need a cure because I already have one. God is my cure. He gives me life and purpose through His great love. The following verses explain what the Bible says about God as a cure:

John 3:16-- For God so loved the world, that he gave his only Son, that whoever believes in him should not perish but have eternal life.

John 11:25-- Jesus said to her, “I am the resurrection and the life. Whoever believes in me, though he die, yet shall he live,

Jeremiah 29:11--  For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope.

John 16:33-- I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.

The Bible is full of examples of healing and restoration through faith in the Lord. My A-T is no different than any other kind of “trouble” or “perishing” that Christ is talking about in John 16:33 and 3:16. I have faith that He has overcome it.  

Secondly, God has shown me His love in the friends and family He has given me.  He has proven to me that if I did not have A-T, I would not have met so many of my friends. God provides a cure for me through these kindred spirits, showing me His love through them. Around them, I can really come out and be myself! Also, God does not only give me friends for just me, but He lets me serve Him by ministering to them as well. With my friends, I get to be blessed and be a blessing.  

I don’t mean to say that there can’t or shouldn’t be a medical cure for A-T. I would still wish for a cure to bring hope to others and especially to children in the future who will be diagnosed. Even though I know He could, I don’t believe that God is going to cure me medically from A-T. God has His own reasons, and I may not ever know exactly what they are. But this I know: He gave me A-T for His own reason, and He is not done with me.

For all people affected by A-T who don’t know Him, I pray that they will someday accept the love of Christ, so that they can know a cure like I’ve come to know.

Blog post #S

A long time ago my dragon angel said that I should blog about my view on comical “super heroes”. I am finally getting around to it. Some people might think it absurd or maybe even offensive, but I don’t care. Everyone is entitled to their OWN opinion. “Super heroes” are very comical and timeless. They’re iconic and idolized by many children. In the words of Disney “It’s adorable, it’s nice to see that humans never change.” That stops being cute when you graduate from childhood. If you’re an adult who does cosplay as a “super hero” or go to comic con, congrats you’re amazing. In my opinion these “super heroes” aren’t marvelous to quote Disney again, “There’s nothing super about them…” I guess it’s a super opportunity to wear pjs, tights, underwear, and any “super hero” paraphernalia. Where does it stop?    Honestly, I think our culture’s worship of “super heroes” could possibly become a cult. My Super Hero is the Super Hero who the world has forsaken. He is the ONLY Super natural Hero in existence: past, present and future.

God is our refuge and strength, a very present help in trouble.

Psalm 46:1   He has “Phenomenal Cosmic Power.” (another Disney quote) far exceeding any “super power” in all the comic books.  He is the savior of my life and the lives of all mankind on this Earth that He created. Regardless of whether they choose to believe in Him or not. More than that He created us, He loves us, He is worthy of endless praise. We should never forget how Super God is. God is a timeless Super Hero who deserves glorious  acknowledgement forever.  

A new prospective

A while ago, I had lost my diamond bride-of-Christ ring. Recently, my mother found it. I should have been heartbroken that I had lost a diamond ring, but I wasn’t. I want to share that I think God has given me a new perspective on the ring.

The ring is just a symbol—a reminder. But I have never thought of it like this before! With that ring, I am declaring that I belong to Christ, that I will serve Him the rest of my life. But that also means that I am defined not by the world, but by God. This includes the fact that I am not defined by AT or the fears that might be connected to AT or medical-ness. So, this ring will always be a reminder to me to look up when I am not feeling positive. Also, I can’t criticize myself too harshly, because if I break my heart, then I am breaking the Lord’s heart.

The LORD is my light and my salvation; whom shall I fear?

The LORD is the stronghold of my life; of whom shall I be afraid?

Psalm 27:1

God is no one to be trifled with

When I was in my thinking place a while back, I found that I am scared to death of “falling in love.” Then I thought if God is love why doesn’t He scare me to death? I think the answer is He does sometimes, to get me to trust Him more.  He created my life and He purchased my life through His son -- my life belongs to Him. He has the right to scare me to death or more if He pleases.

I sometimes think people get this certain view of God as though He were some ever-loving magical hippy in the sky who wouldn’t hurt a fly.  But hell is real. His wrath is real, He is the Lord of Hosts; He commands His armies, He created all the terrible people of history and all the fierce monstrous beasts that walk or have ever walked the earth. He inspired John to write the book of Revelation and He can cripple your years and dreams before you are conceived. The possibilities are endless of what He could do to you. God is to be feared and He should scare you to death.

If you come to know Him and love Him as I have, you will learn to trust Him and believe that whatever He chooses to do with you, you will be falling into His eternal embrace of grace.

“…but steadfast love surrounds the one who trusts in the Lord.” – Psalm 32:11b

“Trust in the Lord with all your heart, and do not lean on your own understanding. In all your ways acknowledge him, and he will make straight your paths.” _ Proverbs 3:5-6

“The fear of the Lord is the beginning of knowledge;
    fools despise wisdom and instruction.” _ Proverbs 1:7

“I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.” – John 16: 33 

Tale as old as time

For as long as I can remember the story of Beauty and the Beast has enchanted me. I can relate with Belle’s curiosity, her longing for more than her “provincial life” and her courage to love.  Though I relate to Belle, I think I almost relate more with the Beast. Did it ever occur to you that because the Beast is so horrible is why Belle is so beautiful? Shouldn’t all mankind relate to the beast’s selfishness and angry bitterness that can transform a man into a monster? I can. If the Lord had not been so gracious with me, if Jesus had not lavished His love upon me I would very much be a monster. A monster crippled by bitterness, isolated from the world, never to know the healing power of love.

1 Corinthians 13:1-3 If I speak in the tongues of men and of angels, but have not love, I am a noisy gong or a clanging cymbal. And if I have prophetic powers, and understand all mysteries and all knowledge, and if I have all faith, so as to remove mountains, but have not love, I am nothing.  If I give away all I have, and if I deliver up my body to be burned, but have not love, I gain nothing.

My testimony

In the first chapter of the gospel of Luke, when Mary is speaking to the angel Gabriel she said in verse thirty-eight “Behold, I am the servant of the Lord; let it be to me according to your word.” I know she never would have chosen the life of misery, but serving our Lord was more important. I would have never chosen to live a life with A-T, but I recognize that serving the Lord is much more important than what I would have chosen. Mary probably didn’t look on this piece of news as a sentence of misery, but a calling for a special purpose. I choose not to look at A-T as a sentence of misery, but a calling for His special purpose. A mark. A brand. For His use forever wherever He leads me.
 Mary then becomes very grateful and praises the Lord in song from verses forty-seven to fifty-five. I am grateful God has blessed me with A-T and He will help me view A-T, not as a curse, but as a calling for His purpose and I know that all things will come together for the good of those who love Him and I will never stop loving Him.

My random musings

I feel like people sometimes cannot grasp the world (or worlds) I live in. I sometimes feel like I live in multiple worlds for instance; the world of A-T, the earth, the world of a Christian, the world of Joni and friends, the world of my family, the world of my friends, and the vast world of my imagination all within the galaxy of the Lord God our savior. I sometimes strive to make my worlds connect because not one of my worlds defines all of me. Technically I do not fit into either one of my worlds, because I am a citizen of heaven which is another world. So I’m like Rey a scavenger with no home and an attitude. Ha!